New Book “Making Rent” Aims in Part to Raise Awareness of Marfan Syndrome
Broadway pioneer, musical director of Rent, author of new book, Making Rent, and friend of...
Author: The Marfan Foundation
The Marfan Foundation drives research, education and support – and builds community – to improve outcomes, save lives and empower all people to thrive who are living with Marfan, Loeys-Dietz, Vascular Ehlers-Danlos syndromes, and related genetic aortic and vascular conditions.
Canadian and U.S. Loeys-Dietz Syndrome Organizations Team Up to Help People Living with Rare Condition Find Community
First-ever joint virtual event to share personal perspectives Montreal, Quebec | Port...
Hello, My Name is Jeanette: “A family diagnosis is a warning and an opportunity to save lives.”
Jeanette shares her first-person experiences in this post. Please note: this story discusses loss...
A mom’s perspective on life in the Philippines with early-onset Marfan syndrome
Penelope shared her first-person story for Marfan Awareness Month. Hi! My name is...
The Marfan Foundation Named a Top Place to Work in Communications
For the first time in its history, the Marfan Foundation has been named a Top Place to Work in...
Remembering Raymond John Chevallier
With deep sadness, the Marfan Foundation announces the passing of Raymond Chevallier -...
After Years of Medical Mysteries, Genetic Test Turns Up Marfan Syndrome – and a Life-Changing Surprise
Summer McKesson's compelling story recently put Marfan in the news with multiple national...
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