Marfan Fact Sheets Now Available in French, German, and Italian
The Marfan Foundation is expanding its resources to make them accessible to people who speak...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
The Marfan Foundation Announces Updated Research Grant Program to Facilitate Transformational Science
The Marfan Foundation, which has funded 158 in research grants and initiatives since 1989, is...
50th Annual NYC Marathon
It's official! On November 7, 2021, 33,000 people will run the 50th Annual NYC Marathon, and we...
Beauty Enthusiast Overcomes Obstacles
Creative, free-spirited, business owner, and recent college graduate, Adariel Lee, of the Bronx,...
La Fundación Marfan estará proporcionando traducciones al español, en vivo para varias sesiones durante su conferencia virtual anual, del 8 al 11 de julio de 2021
La Fundación Marfan estará proporcionando traducciones al español, en vivo para varias sesiones...
The Marfan Foundation to Honor the Legacy of Ann Reinking at Heartworks Across America on June 24
Heartworks Across America, The Marfan Foundation’s signature event, will pay special tribute to...
The Marfan Foundation to Honor Dr. James Black, Dr. Firas Mussa, Barbara Lerman, CPA, and the Legacy of Ann Reinking at Heartworks Across America on June 24
Heartworks Across America, The Marfan Foundation’s signature event, will honor two incredible...
Have a question? We can help.
Contact our Help & Resource Center by
submitting a question via the link below.
Together, We Can Know the Signs
and Fight for Victory
