Volunteer Drives Successful First-Year Proclamation Project
Amy Kipnis, the volunteer leader of our Legislative Action Team, has been a long-time volunteer at...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
March 15-19, 2021, is Marfan Virtual Hill Week
Even though we cannot meet with our lawmakers in the nation's capital this year, we can still...
Secure a Trip to our 2022 Annual Conference in Newport Beach, California!
Want to join us next July in Newport Beach, California, for our 2022 Annual Conference? How...
The Marfan Foundation Launches Kids Club, a Virtual Social Group for Children
Parents asked...we responded! Kids Club, our new virtual group, is for children ages 9-12 with...
How It’s Going
In 2010, Maya Brown-Zimmerman and her husband, Mark, co-wrote a blog post, Marfan Through a...
The Marfan Foundation Marks Marfan Awareness Month (February) with an Array of Education and Awareness Opportunities
Education and awareness is always important to The Marfan Foundation. Marfan Awareness Month is...
Marfan Syndrome Series to be Featured on On-Air-Advocate Podcast during February
The On-Air-Advocate, which provides education, support and empowerment for everyone with different...
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