From Survivor to Advocate and a Roar for Aortic Awareness
Guest Blogger Ryan Rodarmer is the Director of the VEDS Movement, a Division of the Marfan...
The Marfan Blog
Nuestro camino con el Síndrome Marfan
Mi nombre es Mary de Arias de nacionalidad peruana, radico junto a mi familia en...
Community Member, Physical Therapist
Diane Rich Shares Her 2025 Conference Experience Diane Rich, PT, DPT offers her first-person...
“An emotional jamboree…” One parent’s perspective on Marfan syndrome
Monica shares her personal perspective regarding wellbeing and navigating her "parenting journey"...
Why Clinical Trials Matter for the VEDS Community
The VEDS Movement Director Ryan Rodarmer is a genetic counselor and Type A dissection...
Linzy’s Story: Dislocated lenses, Marfan diagnosis, multiple procedures, and career-affirming understanding
Linzy Brown's story of life with Marfan syndrome is deeply connected to her eyes and heavily...
Patrick’s 65+ Years with Marfan Syndrome: “I’ve had a normal life for the most part…”
Patrick Maguire is retired now and we are so grateful that he spends a lot of his free time...
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