The Marfan Blog

College with Loeys-Dietz syndrome

College can be one of the most fun periods in a person’s life, yet it can also be one of the...

Community, Quality of Life March 10, 2016February 24, 2021

Awareness, Community, Family Planning February 8, 2016February 24, 2021

Jamie Efurd – My Marfan Story

“Make it through the door, Jamie. Make it through the door.” Those were my first thoughts as...

Quality of Life January 11, 2016February 24, 2021

Living Well With Marfan Syndrome

From a very young age, I understood that I was not like other kids. I knew that I had eyes that...

Quality of Life December 3, 2015February 24, 2021

Quality of Life: The Three Big Questions

You see your doctors, take your medications, have your Marfan syndrome features monitored...

Community, Family Planning, Volunteer November 20, 2015February 24, 2021

Carolyn Fisher – My Marfan Story

“You are so lazy! Why don’t you get a life!” These words I heard belching from my...

Community, Volunteer November 20, 2015February 24, 2021

7 Simple Fundraising Tips You Can Use Today

“Where there is unity there is always victory.” –Publilius Syrus Our nationwide Walk...

Quality of Life November 4, 2015February 24, 2021

Steve Henry – My Marfan Story

Many people with Marfan syndrome and related disorders find strength from their faith. It helps...

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Together, We Can Know the Signs and Fight for Victory

Know the signs. Fight for victory.

Together, We Can Know the Signs
and Fight for Victory