Leaving home for the first time and living with Marfan: “I have truly discovered the power and strength that lives within me.”
Guest blogger Coley Jackson, 21, of Raleigh, NC is a current student at James Madison University....
The Marfan Blog
Jewelry Designer Living with Marfan Creates Necklace to Commemorate Awareness Month
A Los-Angeles-based jewelry designer and member of the Marfan community has created a specially...
Knowledge of Marfan Syndrome Fosters Longevity, Drives Purpose
I was diagnosed with Marfan Syndrome at birth. My father had a spontaneous mutation, and he passed...
Sweet Relief
Guest writer Mazzy Sass is a junior at Schreiber High School in Port Washington, NY (also the...
Generational Care Provides Continuity
Debra Theine has experienced Marfan syndrome’s impact as a daughter, patient, mother, and...
The Cruz Family
Now that I see things more clearly about my son’s condition, I can tell you our story. My...
Miracles Run In My Family
My father, my brother, and I each had aortic root and valve replacements at 26 years old. Anyone...
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