Life After a VEDS-Related Dissection: Chris Underwood’s Story
“Up until the dissection, I had no idea.” Chris Underwood’s mom had died of...
The Marfan Blog
Natalie’s Legacy: Saving Other Families from Aortic Dissection Loss Due to Undiagnosed VEDS
CAUTION: This story focuses on a detailed account of fatal childhood aortic dissection; the...
En Primera Persona: Las experiencias de Aida como madre con el síndrome de Marfan
Mi nombre es Aida, soy de México. En el 2003 llegué a vivir a los Estados Unidos. El primero...
First Person: Aida’s experiences as a mom with Marfan syndrome
My name is Aida, I'm from Mexico. In 2003 I came to United States to live. One of my sons,...
Aortic Dissection Survivor David Noe’s Experience Leads to Family Members’ Marfan Diagnoses and Preventative Surgeries
“All of a sudden, I just had a crushing chest pain.” David Noe, who had spent large...
Finding Purpose After Loss: Parents’ Mission to Save Others
Kaitlyn was a vibrant, seemingly healthy 14-year-old girl who enjoyed musical theater and...
“This is your story. You are your own unique person.” Living with Marfan syndrome as a member of the LGBTQ+ community
As we commemorate Pride Month, Grace shares her personal perspective as an individual living with...
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