From the Journal of Owen Gray: 2015 Annual Family Conference
Owen Gray, 14, was diagnosed with Marfan syndrome in the summer of 2014. He was excited about...
Blog Category: Diagnosis
Victoria Falcone – My Marfan Story
“With pain comes strength.” This is a quote that I had found online three years ago and...
The First 6 Things You Should Do When Diagnosed with Marfan Syndrome
It’s the beginning of the new year. Is it the beginning of your Marfan journey? If you just...
What the Marfan Community Means to Us
When my younger daughter Cassie turned one almost six years ago, I thought we'd ended the craziest...
Four Questions to Ask Your Family Over the Holidays
When is the most common time of the year for families to get together under one roof? That's...
Have a question? We can help.
Contact our Help & Resource Center by
submitting a question via the link below.
Together, We Can Know the Signs
and Fight for Victory
