The Marfan Foundation Adds Experts to its Professional Advisory Board
PORT WASHINGTON, NY, March 26, 2014 – The Marfan Foundation is pleased to announce the addition...
Category: Announcements
The Marfan Foundation to Honor Angela M. Sharkey, MD, Pediatric Cardiologist, at Heartworks St. Louis, March 1
PORT WASHINGTON, NY, February, 6, 2014 – Angela M. Sharkey, MD, Pediatric Cardiologist at SSM...
President & CEO of The Marfan Foundation Announces Two-Year Transition Plan Leading to Her Retirement
It was exactly 20 years ago that I embarked on the most rewarding journey in my professional life,...
New Resources Help Patients Compare Out-of-Pocket Insurance Costs in Marketplace Coverage
Washington, D.C. – To help consumers understand their out-of-pocket healthcare costs as they...
New York Times Puts the Spotlight on Progress in Marfan Research
In the 1970s, the life expectancy for someone with Marfan syndrome was in the 40s. Less than...
14th Annual Tommy Tant Memorial Surf Classic benefits The Marfan Foundation
The 14th Annual Tommy Tant Memorial Surf Classic presented by Nautica returns to Flagler Beach,...
New Survey Finds One in Five Patients Had Surgery Before Diagnosis
One in five people with Marfan syndrome had some form of surgery before they were diagnosed with...
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