News from
The Marfan Foundation

The Marfan Foundation Launches Inaugural Virtual Walk for Victory

This year, more than 3,000 people are expected to participate in The Marfan...

Announcements January 14, 2020February 25, 2021

Announcements January 8, 2020January 31, 2024

Announcing the #MarfanVictoryChallenge!

February is Marfan Awareness Month, a time for all of us in the community to escalate our efforts...

Announcements December 2, 2019February 25, 2021

The VEDS Movement Launches TheVEDSMovement.org

The VEDS Movement, a new division of The Marfan Foundation, is excited to announce the launch of...

Announcements November 6, 2019February 25, 2021

Foundation Launches 2020 in 2020 Backpack Health Campaign to Increase Participation in Patient Registry

The Marfan Foundation is announcing 2020 in 2020 Backpack Health Campaign, a challenge to its...

Announcements October 15, 2019February 25, 2021

The Marfan Foundation Awards $775,000 in Research Grants

The Marfan Foundation is proud to announce that it is awarding $775,000 to eight...

Announcements October 2, 2019February 25, 2021

The Marfan Foundation Adds Vascular Ehlers-Danlos Syndrome Division

The Marfan Foundation, which saves lives and improves the quality of life for people with Marfan,...

Announcements August 19, 2019February 25, 2021

Working With Your School Nurse

For parents of a child with a connective tissue condition, worrying is a daily habit. The...

Together, We Can Know the Signs
and Fight for Victory

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Together, We Can Know the Signs and Fight for Victory

Know the signs. Fight for victory.

Together, We Can Know the Signs
and Fight for Victory