Community Archives - Page 3 of 14

Awareness, Community, Quality of Life December 15, 2025December 20, 2025

Camp Victory: Making Friends for Life

“My son thoroughly enjoyed his first time at camp,” said Vicci from the UK whose 11-year-old...

My Story with Marfan Syndrome and Aortic Dissection La bloguera invitada Emily Herrera...

Community, Quality of Life July 29, 2025July 29, 2025

Diane Rich Shares Her 2025 Conference Experience Diane Rich, PT, DPT offers her first-person...

Awareness, Community, Conference March 11, 2025March 11, 2025

Being a teen isn’t always easy, and teens with genetic aortic and vascular conditions like...

Awareness, Community March 11, 2025March 11, 2025

When George (Jorge) Carrillo, MSN, RN was diagnosed with Loeys-Dietz syndrome in August 2024,...

Community member Andrew Rankins shares his first-person experiences with Marfan and an early-stage...

After a lifetime of medical issues that were at first unexplainable, then eventually labeled...