Meet Stephanie: Nurse, Mom, and Help & Resource Center Advocate
Thrive Connectors partner with community members every day to help more people Know. Connect....
Author: Susan Benvenuti
Susan Benvenuti is the VP, Integrated Marketing & Communications for The Marfan Foundation. She enjoys getting to know community members and sharing their unique stories. If you would like to share yours, we’d love to hear from you - get started by emailing sbenvenuti@marfan.org.
A Legacy of Gratitude
Every August, Make-A-Will Month serves as an important reminder that creating an estate plan isn't...
From Lived Experience to Healthcare Professional
How community members are shaping the future of care. For many in the Marfan Foundation...
Ready, Set, Transition: Helping Teens Step into Adult Care
For families navigating life with a genetic aortic and vascular condition, the move from pediatric...
A Look Back at 2025: Advancing Marfan and Genetic Aortic & Vascular Conditions Research with $1.44 Million in New Grants
Throughout 2025, The Marfan Foundation continued its longstanding commitment to accelerating...
Camp Victory: Making Friends for Life
“My son thoroughly enjoyed his first time at camp,” said Vicci from the UK whose 11-year-old...
Stickler Syndrome: A New Chapter of Connection, Support, and Resources
Before Lissa Elkins and her husband welcomed twins in 2019, their life was busy but...
Have a question? We can help.
Contact our Help & Resource Center by
submitting a question via the link below.
