The Marfan Foundation is Taking Action
The Marfan Foundation stands for: Ensuring all patients with connective tissue conditions have...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
The Marfan Foundation Adds the GenTAC Alliance to its Family
The GenTAC Alliance, the community of stakeholders committed to advancing the understanding of...
VASCERN Joins The Marfan Foundation to Power the First-Ever E3 International Summit: Educating, Empowering, and Enriching Our Community
The Marfan Foundation is delighted to welcome VASCERN, the European Reference Network, as a...
A Statement from The Marfan Foundation
To our Marfan and related conditions community: It has recently come to our attention that...
Introducing New Loeys-Dietz Syndrome Foundation Director
The Marfan Foundation is pleased to name Angela Crist as the director of its new Loeys-Dietz...
Announcing Our First-Ever E3 International Summit: Educating, Empowering, and Enriching Our Community
Three-Week Online Program Provides Never-Before Virtual Access to Leading Medical Experts...
Backpack Health News for the Marfan and Related Conditions Community
On May 20, Konica Minolta Precision Medicine, Inc., a subsidiary of Konica Minolta,...
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