The Marfan Foundation to Honor the Legacy of Ann Reinking at Heartworks Across America on June 24
Heartworks Across America, The Marfan Foundation’s signature event, will pay special tribute to...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
The Marfan Foundation to Honor Dr. James Black, Dr. Firas Mussa, Barbara Lerman, CPA, and the Legacy of Ann Reinking at Heartworks Across America on June 24
Heartworks Across America, The Marfan Foundation’s signature event, will honor two incredible...
Losing My Sight Saved My Life
Jasmine’s family (l-r) Mom Joanne Duffey, dad Alvin Duffey, Jasmine, sister Jawanda Duffey, and...
Spring into Community Connections, Support, and Education Opportunities
The Spring calendar is full at The Marfan Foundation, with myriad opportunities for everyone with...
Upcoming Clinical Trial Announced for Vascular Ehlers-Danlos Syndrome
Today, Aytu BioPharma announced their intention to conduct a drug therapy trial for...
The Marfan Foundation Named #16 in 2021 Best Nonprofits To Work For
The Marfan Foundation was recently selected again as one of the 2021 Best Nonprofits To...
Volunteer Drives Successful First-Year Proclamation Project
Amy Kipnis, the volunteer leader of our Legislative Action Team, has been a long-time volunteer at...
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