Upcoming Clinical Trial Announced for Vascular Ehlers-Danlos Syndrome
Today, Aytu BioPharma announced their intention to conduct a drug therapy trial for...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
The Marfan Foundation Named #16 in 2021 Best Nonprofits To Work For
The Marfan Foundation was recently selected again as one of the 2021 Best Nonprofits To...
Volunteer Drives Successful First-Year Proclamation Project
Amy Kipnis, the volunteer leader of our Legislative Action Team, has been a long-time volunteer at...
March 15-19, 2021, is Marfan Virtual Hill Week
Even though we cannot meet with our lawmakers in the nation's capital this year, we can still...
Secure a Trip to our 2022 Annual Conference in Newport Beach, California!
Want to join us next July in Newport Beach, California, for our 2022 Annual Conference? How...
The Marfan Foundation Launches Kids Club, a Virtual Social Group for Children
Parents asked...we responded! Kids Club, our new virtual group, is for children ages 9-12 with...
How It’s Going
In 2010, Maya Brown-Zimmerman and her husband, Mark, co-wrote a blog post, Marfan Through a...
Have a question? We can help.
Contact our Help & Resource Center by
submitting a question via the link below.
Together, We Can Know the Signs
and Fight for Victory
