The Marfan Foundation and Loeys-Dietz Syndrome Foundation Join Forces
The Marfan Foundation, which saves lives and improves the quality of life for people with Marfan,...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
Letter from the President/CEO: Annual Conference Update
All of us at The Marfan Foundation have been holding out hope that we would be together this...
Trendsetting Volunteers Encourage Others to #DanceForVictory
Have you seen this? Several leading Foundation volunteers recently launched a new social media...
Town Hall Webinar: The Marfan Foundation Today and in the Better Days Ahead
https://www.youtube.com/watch?v=_cktm5eBaOI&feature=youtu.be Foundation President and CEO...
Planned Giving: All You Need to Know
The Marfan Foundation has launched a new resource for those who are considering planned giving,...
The Marfan Foundation Climbs in 2020 Best Nonprofits to Work For
The Marfan Foundation climbed to #30 in the 2020 Best Nonprofits To Work For, rankings established...
Un Mensaje de Michael Weamer, Presidente y CEO de la Fundación de Marfan
Como puede imaginar, este es un momento de mucho movimiento para la Fundación. Los cambios están...
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