StuffThatWorks and The Marfan Foundation to Engage in Pilot Program
Joint efforts will form best practices for non-profit health organizations to leverage patient...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
Global Virtual Conference 2024 Kicks Off
With a global virtual audience including participants who introduced themselves in chat from...
“It Makes Us Part of Something.” Global Virtual Conference Deepens Connections & Knowledge
Marta Dias of Lisbon, Portugal sees the Foundation's 2024 Global Virtual Conference as a unique...
“This is your story. You are your own unique person.” Living with Marfan syndrome as a member of the LGBTQ+ community
As we commemorate Pride Month, Grace shares her personal perspective as an individual living with...
First Person: Why We Walk – Greater Boston’s Damaa Family
I'm Becky. I am an ICU nurse, avid crocheter, and a wife to my incredibly amazing husband,...
Marfan Foundation: A May of Self-Care & Thanks During Mental Health Awareness Month 2024
During Mental Health Awareness Month (and every day!), we're here to help empower you to live your...
Living Better with Marfan, LDS, and VEDS Around the World: The Marfan Foundation’s Outreach to the Global Community
This year, we are taking our one-day symposiums to Europe with partner organizations to help...
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