Living Better with Marfan, LDS, and VEDS Around the World: The Marfan Foundation’s Outreach to the Global Community
This year, we are taking our one-day symposiums to Europe with partner organizations to help...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
Help & Resource Center Director Jan Lynch Moving to Part-Time Role, Foundation Will Expand Center Staff Team
Director of The Marfan Foundation's Help & Resource Center Janice "Jan" Petrella Lynch, MSN,...
Foundation’s Everest Award Funds Research for Potential New Aortic Dissection Prevention and Treatment
The Marfan Foundation has granted its second Everest Award to a team of researchers led by Julie...
St. Louis Luminaries Set to Celebrate Milestone 15th Heartworks Gala
“What started as an idea 16 years ago has led to one of the most impactful fundraisers...
Celebrating Marfan Awareness T-Shirt Designs
A huge thank you to everyone who submitted entries to our 2024 Marfan Awareness Month t-shirt...
Jewelry Designer Living with Marfan Creates Necklace to Commemorate Awareness Month
A Los-Angeles-based jewelry designer and member of the Marfan community has created a specially...
VEDS Teams are Historic Top 3 at 2024 Tampa Walk for Victory
For the first time in The Marfan Foundation's Walk for Victory (WFV) history, the top three...
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