“This is your story. You are your own unique person.” Living with Marfan syndrome as a member of the LGBTQ+ community
As we commemorate Pride Month, Grace shares her personal perspective as an individual living with...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
First Person: Why We Walk – Greater Boston’s Damaa Family
I'm Becky. I am an ICU nurse, avid crocheter, and a wife to my incredibly amazing husband,...
Marfan Foundation: A May of Self-Care & Thanks During Mental Health Awareness Month 2024
During Mental Health Awareness Month (and every day!), we're here to help empower you to live your...
Living Better with Marfan, LDS, and VEDS Around the World: The Marfan Foundation’s Outreach to the Global Community
This year, we are taking our one-day symposiums to Europe with partner organizations to help...
Help & Resource Center Director Jan Lynch Moving to Part-Time Role, Foundation Will Expand Center Staff Team
Director of The Marfan Foundation's Help & Resource Center Janice "Jan" Petrella Lynch, MSN,...
Foundation’s Everest Award Funds Research for Potential New Aortic Dissection Prevention and Treatment
The Marfan Foundation has granted its second Everest Award to a team of researchers led by Julie...
St. Louis Luminaries Set to Celebrate Milestone 15th Heartworks Gala
“What started as an idea 16 years ago has led to one of the most impactful fundraisers...
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