New Director Announced for Loeys-Dietz Syndrome Foundation
Stacey Watson has been selected by The Marfan Foundation to join its team as Director of the...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
Running with Purpose: Jenny Braverman
Running this marathon on behalf of my family and others affected by Marfan Syndrome and related...
“After a Lifetime, I Get to Be Proactive”
A Marfan journey from aortic dissection to empowerment Stephanie Mahnken of Dillonvale, OH...
In Memory of Chris Heaney
This week, we sadly bid farewell to a true pillar of our Marfan community, Christopher Heaney. In...
Save the Dates: Upcoming Symposia
Whether you have attended numerous Foundation events or are brand new to our offerings, we invite...
Joaquin’s Story: Aortic Disease Awareness
"My whole world changed in an instant..." On July 31, 2020, my whole world changed in an...
For Healthcare Providers Watch & Share, 3 Things Every ED Pro Should Know About Aortic Emergencies
https://www.youtube.com/watch?v=SnHvBOjdUK0&feature=youtu.be In this two-minute video,...
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