The Marfan Blog

Nuestro camino con el Síndrome Marfan

Mi nombre es Mary de Arias de nacionalidad peruana, radico junto a mi familia en...

August 27, 2025August 27, 2025

Community, Quality of Life July 29, 2025July 29, 2025

Community Member, Physical Therapist

Diane Rich Shares Her 2025 Conference Experience Diane Rich, PT, DPT offers her first-person...

Mental Health, Quality of Life May 21, 2025May 21, 2025

“An emotional jamboree…” One parent’s perspective on Marfan syndrome

Monica shares her personal perspective regarding wellbeing and navigating her "parenting journey"...

April 16, 2025April 16, 2025

Linzy’s Story: Dislocated lenses, Marfan diagnosis, multiple procedures, and career-affirming understanding

Linzy Brown's story of life with Marfan syndrome is deeply connected to her eyes and heavily...

Quality of Life April 13, 2025April 13, 2025

Patrick’s 65+ Years with Marfan Syndrome: “I’ve had a normal life for the most part…”

Patrick Maguire is retired now and we are so grateful that he spends a lot of his free time...

Awareness, Family Planning, Quality of Life April 8, 2025April 9, 2025

Leticia’s Pregnancy Story: “I know how to take care of myself…”

Decisions around family planning, pregnancy, and related considerations are very personal. We...

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Together, We Can Know the Signs and Fight for Victory

Know the signs. Fight for victory.

Together, We Can Know the Signs
and Fight for Victory