The Marfan Blog

Leticia’s Pregnancy Story: “I know how to take care of myself…”

Decisions around family planning, pregnancy, and related considerations are very personal. We...

Awareness, Family Planning, Quality of Life April 8, 2025April 9, 2025

Awareness March 14, 2025March 14, 2025

“Marfan just happens to be a part of me…” Andrea’s Story

Andrea Aguiar shares her first-person experiences living with Marfan syndrome in this guest...

Awareness, Community, Conference March 11, 2025March 11, 2025

Teen Voices: Overcoming Challenges

Being a teen isn’t always easy, and teens with genetic aortic and vascular conditions like...

Awareness, Community March 11, 2025March 11, 2025

Provider to Patient: A Nurse’s Journey Through Loeys-Dietz Syndrome Diagnosis & Heart Surgery

When George (Jorge) Carrillo, MSN, RN was diagnosed with Loeys-Dietz syndrome in August 2024,...

Awareness February 27, 2025March 11, 2025

Finding Purpose in New Places: Traveling the World Alongside Life with Loeys-Dietz Syndrome

(Advisory: This Story Discusses Aortic Dissection) Throwing Caution to the Wind Moving...

Awareness, Community, Diagnosis, Mental Health, Quality of Life February 8, 2025February 12, 2025

Scan to Save: Growing up with Marfan, being diagnosed with cancer

Community member Andrew Rankins shares his first-person experiences with Marfan and an early-stage...

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Together, We Can Know the Signs and Fight for Victory

Know the signs. Fight for victory.

Together, We Can Know the Signs
and Fight for Victory