Linzy’s Story: Dislocated lenses, Marfan diagnosis, multiple procedures, and career-affirming understanding
Linzy Brown's story of life with Marfan syndrome is deeply connected to her eyes and heavily...
The Marfan Blog
Patrick’s 65+ Years with Marfan Syndrome: “I’ve had a normal life for the most part…”
Patrick Maguire is retired now and we are so grateful that he spends a lot of his free time...
Leticia’s Pregnancy Story: “I know how to take care of myself…”
Decisions around family planning, pregnancy, and related considerations are very personal. We...
“Marfan just happens to be a part of me…” Andrea’s Story
Andrea Aguiar shares her first-person experiences living with Marfan syndrome in this guest...
Teen Voices: Overcoming Challenges
Being a teen isn’t always easy, and teens with genetic aortic and vascular conditions like...
Provider to Patient: A Nurse’s Journey Through Loeys-Dietz Syndrome Diagnosis & Heart Surgery
When George (Jorge) Carrillo, MSN, RN was diagnosed with Loeys-Dietz syndrome in August 2024,...
Finding Purpose in New Places: Traveling the World Alongside Life with Loeys-Dietz Syndrome
(Advisory: This Story Discusses Aortic Dissection) Throwing Caution to the Wind Moving...
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