Diagnosed with Stickler Syndrome 18 Years Ago, Marie Law, 63, says: “You Can Live a Full Life.”
Marie Law with her son, David. He is the only one of her five children who has Stickler...
The Marfan Blog
Camp Victory 2026: Where Summer Fun Builds Lasting Connections
There are subtle changes at Camp Victory for Kids’ two five-night summer camp sessions each...
After Her Husband’s Aortic Dissection: Heidi’s Story
In the aftermath of her husband Chris’s aortic dissection, Heidi Underwood had no plans...
Putting Loeys-Dietz on the Page
Patrick Stapleton’s debut novel honors his sister while raising awareness of the connective...
Meet Stephanie: Nurse, Mom, and Help & Resource Center Advocate
Thrive Connectors partner with community members every day to help more people Know. Connect....
A Legacy of Gratitude
Every August, Make-A-Will Month serves as an important reminder that creating an estate plan isn't...
Essential Care: Mental Health and Life with VEDS
“The mental health burden of living with VEDS is profound,” says Karen MountainJohnson, a...
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