“An emotional jamboree…” One parent’s perspective on Marfan syndrome
Monica shares her personal perspective regarding wellbeing and navigating her "parenting journey"...
The Marfan Blog
Why Clinical Trials Matter for the VEDS Community
The VEDS Movement Director Ryan Rodarmer is a genetic counselor and Type A dissection...
Linzy’s Story: Dislocated lenses, Marfan diagnosis, multiple procedures, and career-affirming understanding
Linzy Brown's story of life with Marfan syndrome is deeply connected to her eyes and heavily...
Patrick’s 65+ Years with Marfan Syndrome: “I’ve had a normal life for the most part…”
Patrick Maguire is retired now and we are so grateful that he spends a lot of his free time...
Leticia’s Pregnancy Story: “I know how to take care of myself…”
Decisions around family planning, pregnancy, and related considerations are very personal. We...
“Marfan just happens to be a part of me…” Andrea’s Story
Andrea Aguiar shares her first-person experiences living with Marfan syndrome in this guest...
Teen Voices: Overcoming Challenges
Being a teen isn’t always easy, and teens with genetic aortic and vascular conditions like...
Have a question? We can help.
Contact our Help & Resource Center by
submitting a question via the link below.
Together, We Can Know the Signs
and Fight for Victory
