Stickler Syndrome: A New Chapter of Connection, Support, and Resources
Before Lissa Elkins and her husband welcomed twins in 2019, their life was busy but...
The Marfan Blog
Behavioral Health and Concurrent Chronic Illness: A Call to Action
ADVISORY: This post discusses depression, addiction, and loss. Guest blogger Rosanne...
Today is VEDS Action Day
Please note: this story discusses and depicts emergency medical experiences. Guest...
“I still have so much to live for”: healing after Marfan-related aortic surgeries
Guest Blogger Rosa Adriana Felix is an aortic surgery survivor. She shares her story in her own...
Mi Historia con el Síndrome de Marfan y la Disección Aórtica
My Story with Marfan Syndrome and Aortic Dissection La bloguera invitada Emily Herrera...
From Survivor to Advocate and a Roar for Aortic Awareness
Guest Blogger Ryan Rodarmer is the Director of the VEDS Movement, a Division of the Marfan...
Nuestro camino con el Síndrome Marfan
Mi nombre es Mary de Arias de nacionalidad peruana, radico junto a mi familia en...
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