The Marfan Blog

A Costco Shopper Saved my Life

“If she’s your Mom, you need to get tested,” a woman said to me. She had noticed me – a...

Advocacy, Awareness, Education, Quality of Life February 9, 2021February 24, 2021

Advocacy, Awareness, Quality of Life February 2, 2021February 24, 2021

Healthy Life Comes From Awareness

I was diagnosed with Marfan syndrome around the age of 12 years old, while growing up in Meridian,...

Quality of Life January 7, 2021July 22, 2021

Choices

The moment in which a child is born is the most miraculous moment of opportunity. In the moment in...

Community, Healthcare Management, Quality of Life, Surgery December 1, 2020September 14, 2023

Top Five Things I Wish I Knew Before My Aortic Surgery

When I had my open-heart surgery to repair my aorta back in the summer of 2014, I did not have...

Diagnosis, Healthcare Management, Research November 23, 2020February 24, 2021

Your Questions Answered: Medical Geneticist and Genetic Testing

If you have a connective tissue condition or are seeking an evaluation for one, you know that you...

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Together, We Can Know the Signs and Fight for Victory

Know the signs. Fight for victory.

Together, We Can Know the Signs
and Fight for Victory