Why I’m Grateful for Marfan Syndrome
I was recently reading a book called How to Live a Good Life by Jonathan Fields (which I highly...
The Marfan Blog
“If This is the Future of the Foundation, Then Victory is Around the Corner!” Teen Council members are leaders and role models
The Marfan Foundation’s Teen Council is a force to be reckoned with now. And they are clearly...
Pregnancy and Marfan Syndrome: An Update from Melissa L. Russo, MD
Marfan syndrome is a connective tissue disorder that has effects on the heart, blood vessels,...
Q & A with Jan Lynch, MSN, RN: Director of Help & Resource Center
Jan Lynch, MSN, RN, joined The Marfan Foundation staff in April as the Director of the Help &...
Meet Your Gene: An Introduction to the Marfan Gene and Current Research
Roanne Weisman, a healthcare writer from Boston who has Marfan syndrome and long-time member of...
When it Feels Like Marfan is Winning
About six months ago, I made the decision to “retire” from my career as a full time nanny at...
My Marfan Story: Selma Kerzman
Blake and I met in high school. When I went to his high school graduation, I met his mom and dad....
Have a question? We can help.
Contact our Help & Resource Center by
submitting a question via the link below.
Together, We Can Know the Signs
and Fight for Victory
