The Marfan Blog

Nutrition, Weight, and Quality of Life – Part 3 of 3

In recent blog posts, we shared Alix McLean Jennings’ story about how she worked with a...

Quality of Life April 25, 2016February 24, 2021

Quality of Life April 7, 2016February 24, 2021

Nutrition, Weight, and Quality of Life – Part 2 of 3

We recently shared Alix McLean Jennings’ story about how she worked with a nutritionist to bring...

Quality of Life March 22, 2016February 24, 2021

Nutrition, Weight, and Quality of Life – Part 1 of 3

I am so excited about The Marfan Foundation’s initiative to focus on the quality of life issues...

Community, Quality of Life March 10, 2016February 24, 2021

College with Loeys-Dietz syndrome

College can be one of the most fun periods in a person’s life, yet it can also be one of the...

Awareness, Community, Family Planning February 8, 2016February 24, 2021

Jamie Efurd – My Marfan Story

“Make it through the door, Jamie. Make it through the door.” Those were my first thoughts as...

Quality of Life January 11, 2016February 24, 2021

Living Well With Marfan Syndrome

From a very young age, I understood that I was not like other kids. I knew that I had eyes that...

Quality of Life December 3, 2015February 24, 2021

Quality of Life: The Three Big Questions

You see your doctors, take your medications, have your Marfan syndrome features monitored...

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Together, We Can Know the Signs and Fight for Victory

Know the signs. Fight for victory.

Together, We Can Know the Signs
and Fight for Victory