Aortic Dissection, My Family, and the Annual Marfan Conference
I don’t have the greatest memory, so I am not sure when I attended my first conference. I do...
The Marfan Blog
Weight Gain and Marfan Syndrome – Why Can’t I Put On Weight?
Many people with Marfan syndrome have difficulty gaining weight, especially when they are...
My Daughter’s First Marfan Conference – A Decade After Diagnosis
There we were, at The Marfan Foundation’s 2013 Annual Family Conference in Beverly Hills,...
Flaunting Every Single Bit of My DNA – Living with Marfan Syndrome
Though I stand at a measly 5'8 for a “Marf,” as a freshman in high school, I towered over my...
5 Things You Can Do for Marfan Awareness Month
Do you still get blank stares from people when you say that you have Marfan syndrome? How many...
The First 6 Things You Should Do When Diagnosed with Marfan Syndrome
It’s the beginning of the new year. Is it the beginning of your Marfan journey? If you just...
What the Marfan Community Means to Us
When my younger daughter Cassie turned one almost six years ago, I thought we'd ended the craziest...
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