Mi Historia con el Síndrome de Marfan y la Disección Aórtica
My Story with Marfan Syndrome and Aortic Dissection La bloguera invitada Emily Herrera...
Know the Signs, Fight for Victory
My Story with Marfan Syndrome and Aortic Dissection La bloguera invitada Emily Herrera...
Kaitlyn was a vibrant, seemingly healthy 14-year-old girl who enjoyed musical theater and...
I was so excited to attend the Michigan Regional Symposium in early May! We moved to Michigan in...
Last year, Reginald “Reg” Bronson and his family gathered for the funeral of his brother who...
A Marfan Awareness Month Blog Photo: In January, Christopher was presented with a...
Chronically ill and disabled individuals utilize the internet to find community and spread...
Emily Ladau, author and activist, is a part of the rare disease community. She lives with Larsen...