Natalie’s Legacy: Saving Other Families from Aortic Dissection Loss Due to Undiagnosed VEDS
CAUTION: This story focuses on a detailed account of fatal childhood aortic dissection; the...
Blog Category: Awareness
Aortic Dissection Survivor David Noe’s Experience Leads to Family Members’ Marfan Diagnoses and Preventative Surgeries
“All of a sudden, I just had a crushing chest pain.” David Noe, who had spent large...
Finding Purpose After Loss: Parents’ Mission to Save Others
Kaitlyn was a vibrant, seemingly healthy 14-year-old girl who enjoyed musical theater and...
Knowledge of Marfan Syndrome Fosters Longevity, Drives Purpose
I was diagnosed with Marfan Syndrome at birth. My father had a spontaneous mutation, and he passed...
Sweet Relief
Guest writer Mazzy Sass is a junior at Schreiber High School in Port Washington, NY (also the...
The Cruz Family
Now that I see things more clearly about my son’s condition, I can tell you our story. My...
Miracles Run In My Family
My father, my brother, and I each had aortic root and valve replacements at 26 years old. Anyone...
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