Blog Category: Awareness

Awareness, Diagnosis, Education February 9, 2024July 31, 2024

Knowledge of Marfan Syndrome Fosters Longevity, Drives Purpose

I was diagnosed with Marfan Syndrome at birth. My father had a spontaneous mutation, and he passed...

Awareness, Community, Quality of Life, Surgery December 19, 2023December 20, 2023

Sweet Relief

Guest writer Mazzy Sass is a junior at Schreiber High School in Port Washington, NY (also the...

Awareness, Community, Know the Signs November 28, 2023November 28, 2023

The Cruz Family

Now that I see things more clearly about my son’s condition, I can tell you our story. My...

Awareness, Community November 28, 2023

Miracles Run In My Family

My father, my brother, and I each had aortic root and valve replacements at 26 years old. Anyone...

Awareness, Community, Know the Signs November 28, 2023

Let’s Just Get Checked Out

I'd actually heard about Marfan Syndrome before my dissection. It was mentioned on a TV program...

Awareness, Know the Signs, Mental Health, Surgery, Volunteer September 13, 2023September 14, 2023

Joaquin’s Story: Aortic Disease Awareness

"My whole world changed in an instant..." On July 31, 2020, my whole world changed in an...

Advocacy, Awareness, Community, Education, Mental Health June 1, 2023June 14, 2023

Connected and Not Alone

I was so excited to attend the Michigan Regional Symposium in early May! We moved to Michigan in...

Together, We Can Know the Signs
and Fight for Victory

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Together, We Can Know the Signs and Fight for Victory

Know the signs. Fight for victory.

Together, We Can Know the Signs
and Fight for Victory