Julie Kurnitz’s Marfan Story Gives Hope to Others
Ten years ago, we lost a dear member of our community, Julie Kurnitz. Julie served on our Board of...
Know the Signs, Fight for Victory
Ten years ago, we lost a dear member of our community, Julie Kurnitz. Julie served on our Board of...
“With pain comes strength.” This is a quote that I had found online three years ago and...
“I wouldn’t worry too much about the rapid heart beat, but you should look at this.” Those...
When I shared that my victory over Marfan and related disorders was "Finding a MarFriend and a...
Twelve years ago I married my husband Mike. Up until I met him, I had never heard of Marfan...
When my younger daughter Cassie turned one almost six years ago, I thought we'd ended the craziest...
When I started my journey with The Marfan Foundation 19 years ago, we were up against so...