Krystal Camire – My Marfan Story
My journey with Marfan syndrome has been a long and complicated one. I was first tested when I was...
Know the Signs, Fight for Victory
My journey with Marfan syndrome has been a long and complicated one. I was first tested when I was...
In 1989, I was beginning my sophomore year of college when I received a call from home. While he...
The end of this year will mark 10 years since my world changed, 10 years since my parents scoured...
This fall, we held the Adopt-A-School Victory Challenge to encourage parents, guardians,...
My daughter, Emma, just started 6th grade - middle school in our district. Like a lot of parents...
Ten years ago, we lost a dear member of our community, Julie Kurnitz. Julie served on our Board of...
“With pain comes strength.” This is a quote that I had found online three years ago and...