Blog Category: Community

Awareness, Community, Quality of Life November 9, 2018February 24, 2021

We Found Our Family

For most people, family is the first group of people we know and trust. Newborn babies know their...

Community, Healthcare Management, Research September 24, 2018February 24, 2021

Jim Cavan: The Journey to Backpack Health

Maggie, with her mom, Jennifer, at the Foundation's Boston Walk for Victory in June. As...

Community, Conference, Quality of Life May 26, 2018February 24, 2021

A Make-Over Because of the Marfan Annual Conference

Ashley Burks was 23 when her life changed. That year, 2005, she excitedly attended the Marfan...

Community, Research May 7, 2018February 24, 2021

Earthly Angels

During National Nurses Week, I would like to honor the wonderful men and women who serve...

Community, Quality of Life April 25, 2018September 26, 2021

Gone But Never Forgotten: A New Way to Think About Grief

I like to think that I’m a fairly positive person, especially when it comes to my Marfan...

Awareness, Community February 27, 2018February 24, 2021

My Marfan Story: Kacey Lamphier

The month of February is extra important to me as it marks the month of the heart. I have been...

Awareness, Community February 20, 2018February 24, 2021

Marfan Diagnosis: A Game Changer

A Marfan or related disorder diagnosis can be elusive for an athlete, particularly an athlete who...

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Together, We Can Know the Signs and Fight for Victory

Know the signs. Fight for victory.

Together, We Can Know the Signs
and Fight for Victory