Community Archives - Page 6 of 11

Community, Conference March 11, 2019February 24, 2021

Finding Commonality at the Marfan Annual Conference

The diagnosis of a potentially life-threatening genetic disorder like Marfan syndrome, Loeys...

Awareness, Community, Quality of Life November 27, 2018February 24, 2021

Keith has never been terribly outgoing. He’s taller than other kids and wears thick glasses. He...

Connection is at the core of the Snyder family’s resilience. Through a combination of close...

Awareness, Community, Quality of Life November 13, 2018February 24, 2021

There are few things stronger than a mother’s intuition. The strength of this “knowing” is...

Awareness, Community, Quality of Life November 9, 2018February 24, 2021

For most people, family is the first group of people we know and trust. Newborn babies know their...

Community, Healthcare Management, Research September 24, 2018February 24, 2021

Maggie, with her mom, Jennifer, at the Foundation's Boston Walk for Victory in June. As...

Ashley Burks was 23 when her life changed. That year, 2005, she excitedly attended the Marfan...