Ben Carpenter – My Marfan Story
Before I share my story, I want to clarify that the title of my book, “The Bigs,” has nothing...
Blog Category: Know the Signs
Weight Gain and Marfan Syndrome – Why Can’t I Put On Weight?
Many people with Marfan syndrome have difficulty gaining weight, especially when they are...
Flaunting Every Single Bit of My DNA – Living with Marfan Syndrome
Though I stand at a measly 5'8 for a “Marf,” as a freshman in high school, I towered over my...
Aging with Marfan Syndrome: 5 Common Questions
Well, for many people, this just brings up more questions. Living longer is great, but aging comes...
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