Blog Category: Mental Health

Awareness, Community, Diagnosis, Mental Health, Quality of Life February 8, 2025February 12, 2025

Scan to Save: Growing up with Marfan, being diagnosed with cancer

Community member Andrew Rankins shares his first-person experiences with Marfan and an early-stage...

Awareness, Know the Signs, Mental Health, Surgery, Volunteer September 13, 2023September 14, 2023

Joaquin’s Story: Aortic Disease Awareness

"My whole world changed in an instant..." On July 31, 2020, my whole world changed in an...

Advocacy, Awareness, Community, Education, Mental Health June 1, 2023June 14, 2023

Connected and Not Alone

I was so excited to attend the Michigan Regional Symposium in early May! We moved to Michigan in...

Awareness, Mental Health February 13, 2023February 13, 2023

Mental Health: Sharing Leads to Support and Hope

What are the mental health issues that people with Marfan syndrome and related connective tissue...

Awareness, Community, Education, Healthcare Management, Mental Health February 14, 2022February 11, 2022

Mental Health with Marfan Syndrome (in a Post-2020 World)

When you have a lifelong condition like Marfan syndrome, your daily experience looks different...

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Together, We Can Know the Signs and Fight for Victory

Know the signs. Fight for victory.

Together, We Can Know the Signs
and Fight for Victory