After Years of Medical Mysteries, Genetic Test Turns Up Marfan Syndrome – and a Life-Changing Surprise
Summer McKesson's compelling story recently put Marfan in the news with multiple national...
Blog Category: Mental Health
Today is VEDS Action Day
Please note: this story discusses and depicts emergency medical experiences. Guest...
“An emotional jamboree…” One parent’s perspective on Marfan syndrome
Monica shares her personal perspective regarding wellbeing and navigating her "parenting journey"...
Scan to Save: Growing up with Marfan, being diagnosed with cancer
Community member Andrew Rankins shares his first-person experiences with Marfan and an early-stage...
Joaquin’s Story: Aortic Disease Awareness
"My whole world changed in an instant..." On July 31, 2020, my whole world changed in an...
Connected and Not Alone
I was so excited to attend the Michigan Regional Symposium in early May! We moved to Michigan in...
Mental Health: Sharing Leads to Support and Hope
What are the mental health issues that people with Marfan syndrome and related connective tissue...
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