“An emotional jamboree…” One parent’s perspective on Marfan syndrome
Monica shares her personal perspective regarding wellbeing and navigating her "parenting journey"...
Know the Signs, Fight for Victory
Monica shares her personal perspective regarding wellbeing and navigating her "parenting journey"...
Community member Andrew Rankins shares his first-person experiences with Marfan and an early-stage...
"My whole world changed in an instant..." On July 31, 2020, my whole world changed in an...
I was so excited to attend the Michigan Regional Symposium in early May! We moved to Michigan in...
What are the mental health issues that people with Marfan syndrome and related connective tissue...
When you have a lifelong condition like Marfan syndrome, your daily experience looks different...