Quality of Life Archives - Marfan Foundation

After Years of Medical Mysteries, Genetic Test Turns Up Marfan Syndrome – and a Life-Changing Surprise

Summer McKesson's compelling story recently put Marfan in the news with multiple national...

Awareness, Community, Quality of Life December 15, 2025December 20, 2025

“My son thoroughly enjoyed his first time at camp,” said Vicci from the UK whose 11-year-old...

Please note: this story discusses and depicts emergency medical experiences. Guest...

Community, Quality of Life July 29, 2025July 29, 2025

Diane Rich Shares Her 2025 Conference Experience Diane Rich, PT, DPT offers her first-person...

Monica shares her personal perspective regarding wellbeing and navigating her "parenting journey"...

The VEDS Movement Director Ryan Rodarmer is a genetic counselor and Type A dissection...

Quality of Life April 13, 2025April 13, 2025

Patrick Maguire is retired now and we are so grateful that he spends a lot of his free time...