Quality of Life Archives - Marfan Foundation

Leticia’s Pregnancy Story: “I know how to take care of myself…”

Decisions around family planning, pregnancy, and related considerations are very personal. We...

Community member Andrew Rankins shares his first-person experiences with Marfan and an early-stage...

After a lifetime of medical issues that were at first unexplainable, then eventually labeled...

Awareness, Community, Quality of Life, Surgery December 19, 2023December 20, 2023

Guest writer Mazzy Sass is a junior at Schreiber High School in Port Washington, NY (also the...

Debra Theine has experienced Marfan syndrome’s impact as a daughter, patient, mother, and...

As a teen with a connective tissue condition, building relationships with others who “get” you...

Awareness, Community, Quality of Life January 13, 2022January 13, 2022

My story about Marfan syndrome mostly takes a back seat to my husband's. He's the one with Marfan,...