Quality of Life Archives - Marfan Foundation

Community, Quality of Life July 29, 2025July 29, 2025

Community Member, Physical Therapist

Diane Rich Shares Her 2025 Conference Experience Diane Rich, PT, DPT offers her first-person...

Monica shares her personal perspective regarding wellbeing and navigating her "parenting journey"...

The VEDS Movement Director Ryan Rodarmer is a genetic counselor and Type A dissection...

Quality of Life April 13, 2025April 13, 2025

Patrick Maguire is retired now and we are so grateful that he spends a lot of his free time...

Decisions around family planning, pregnancy, and related considerations are very personal. We...

Community member Andrew Rankins shares his first-person experiences with Marfan and an early-stage...

After a lifetime of medical issues that were at first unexplainable, then eventually labeled...