Living Well With Marfan Syndrome
From a very young age, I understood that I was not like other kids. I knew that I had eyes that...
Blog Category: Quality of Life
Quality of Life: The Three Big Questions
You see your doctors, take your medications, have your Marfan syndrome features monitored...
Steve Henry – My Marfan Story
Many people with Marfan syndrome and related disorders find strength from their faith. It helps...
Embracing A Road Not Chosen Through Painting
Embracing a road not chosen is a choice that is put in front of all of us when facing an illness...
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