College with Loeys-Dietz syndrome
College can be one of the most fun periods in a person’s life, yet it can also be one of the...
Know the Signs, Fight for Victory
College can be one of the most fun periods in a person’s life, yet it can also be one of the...
From a very young age, I understood that I was not like other kids. I knew that I had eyes that...
You see your doctors, take your medications, have your Marfan syndrome features monitored...
Many people with Marfan syndrome and related disorders find strength from their faith. It helps...
Embracing a road not chosen is a choice that is put in front of all of us when facing an illness...