Quality of Life November 4, 2015February 24, 2021

Steve Henry – My Marfan Story

Many people with Marfan syndrome and related disorders find strength from their faith. It helps...

Quality of Life April 28, 2014February 25, 2021

Embracing A Road Not Chosen Through Painting

Embracing a road not chosen is a choice that is put in front of all of us when facing an illness...

Together, We are Fighting for Victory

View all Divisions

Marfan
Foundation
Loeys-Dietz Syndrome Foundation
The VEDS
Movement

View Our science and treatment arm

Know the signs. Fight for victory.

Join us in the fight for victory over Marfan syndrome, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions. Help us create a world in which everyone with these conditions can live their best life.

Donate Now

Blog Category: Quality of Life

Steve Henry – My Marfan Story

Embracing A Road Not Chosen Through Painting

Have a question? We can help.

Together, We are Fighting for Victory

Know the signs. Fight for victory.

Stay Connected on Social Media

Have a question? We can help.

Together, We are Fighting for Victory

Know the signs. Fight for victory.