Quality of Life Archives - Page 2 of 11

Why Clinical Trials Matter for the VEDS Community

The VEDS Movement Director Ryan Rodarmer is a genetic counselor and Type A dissection...

Quality of Life April 13, 2025April 13, 2025

Patrick Maguire is retired now and we are so grateful that he spends a lot of his free time...

Decisions around family planning, pregnancy, and related considerations are very personal. We...

Community member Andrew Rankins shares his first-person experiences with Marfan and an early-stage...

After a lifetime of medical issues that were at first unexplainable, then eventually labeled...

Awareness, Community, Quality of Life, Surgery December 19, 2023December 20, 2023

Guest writer Mazzy Sass is a junior at Schreiber High School in Port Washington, NY (also the...

Debra Theine has experienced Marfan syndrome’s impact as a daughter, patient, mother, and...