Newly Diagnosed? Veterans in the Marfan Community Offer Advice
When you or a loved one receives a diagnosis of Marfan syndrome or a related disorder, you enter a...
Blog Category: Quality of Life
The Journey of [Control] Acceptance
Life is constantly in session, whether I am ready for it or not. There is a never ending battle...
Physical Therapy: Myths and Facts
People everywhere are experiencing the transformative effect physical therapy can have on their...
Sydney Lerman Pediatric Hospitality Program: Join Sydney and Carly in Giving Back
Sydney Lerman, of Westchester, NY, is a smart, fun-loving, and spirited daughter, sister, cousin,...
My Marfan Story: Keith Avitabile
The Avitabile family has a long-time commitment to The Marfan Foundation. This year, Scott...
Why I’m Grateful for Marfan Syndrome
I was recently reading a book called How to Live a Good Life by Jonathan Fields (which I highly...
Pregnancy and Marfan Syndrome: An Update from Melissa L. Russo, MD
Marfan syndrome is a connective tissue disorder that has effects on the heart, blood vessels,...
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