Sydney Lerman Pediatric Hospitality Program: Join Sydney and Carly in Giving Back
Sydney Lerman, of Westchester, NY, is a smart, fun-loving, and spirited daughter, sister, cousin,...
Blog Category: Quality of Life
My Marfan Story: Keith Avitabile
The Avitabile family has a long-time commitment to The Marfan Foundation. This year, Scott...
Why I’m Grateful for Marfan Syndrome
I was recently reading a book called How to Live a Good Life by Jonathan Fields (which I highly...
Pregnancy and Marfan Syndrome: An Update from Melissa L. Russo, MD
Marfan syndrome is a connective tissue disorder that has effects on the heart, blood vessels,...
Meet Your Gene: An Introduction to the Marfan Gene and Current Research
Roanne Weisman, a healthcare writer from Boston who has Marfan syndrome and long-time member of...
When it Feels Like Marfan is Winning
About six months ago, I made the decision to “retire” from my career as a full time nanny at...
My Marfan Story: Selma Kerzman
Blake and I met in high school. When I went to his high school graduation, I met his mom and dad....
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