Meet Your Gene: An Introduction to the Marfan Gene and Current Research
Roanne Weisman, a healthcare writer from Boston who has Marfan syndrome and long-time member of...
Blog Category: Quality of Life
When it Feels Like Marfan is Winning
About six months ago, I made the decision to “retire” from my career as a full time nanny at...
My Marfan Story: Selma Kerzman
Blake and I met in high school. When I went to his high school graduation, I met his mom and dad....
Sinclaire’s Story from the Heart
Most people affected by Marfan syndrome experience a life-changing moment when they or a loved one...
What Fulfills You?
When you think about your life as an able-bodied person, what fulfills you? Does going to work and...
Linh Ngo: My Marfan Story
Part 1 of Linh Ngo’s Marfan story is reprinted here with permission from the author. You can...
Improving Your Quality of Life: An Introduction to Reflexology
Reflexology can help reduce pain and increase energy. It is not a cure, but it can make the...
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