Blog Category: Quality of Life

Community, Know the Signs, Quality of Life July 20, 2016February 24, 2021

Linh Ngo: My Marfan Story

Part 1 of Linh Ngo’s Marfan story is reprinted here with permission from the author. You can...

Quality of Life June 28, 2016February 24, 2021

Improving Your Quality of Life: An Introduction to Reflexology

Reflexology can help reduce pain and increase energy. It is not a cure, but it can make the...

Community, Quality of Life May 13, 2016February 24, 2021

When People Don’t Get It

As an individual with Marfan syndrome, you've most likely had that awkward encounter with a...

Quality of Life April 25, 2016February 24, 2021

Nutrition, Weight, and Quality of Life – Part 3 of 3

In recent blog posts, we shared Alix McLean Jennings’ story about how she worked with a...

Quality of Life April 7, 2016February 24, 2021

Nutrition, Weight, and Quality of Life – Part 2 of 3

We recently shared Alix McLean Jennings’ story about how she worked with a nutritionist to bring...

Quality of Life March 22, 2016February 24, 2021

Nutrition, Weight, and Quality of Life – Part 1 of 3

I am so excited about The Marfan Foundation’s initiative to focus on the quality of life issues...

Community, Quality of Life March 10, 2016February 24, 2021

College with Loeys-Dietz syndrome

College can be one of the most fun periods in a person’s life, yet it can also be one of the...

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Together, We Can Know the Signs and Fight for Victory

Know the signs. Fight for victory.

Together, We Can Know the Signs
and Fight for Victory