Blog Category: Quality of Life

Quality of Life April 7, 2016February 24, 2021

Nutrition, Weight, and Quality of Life – Part 2 of 3

We recently shared Alix McLean Jennings’ story about how she worked with a nutritionist to bring...

Quality of Life March 22, 2016February 24, 2021

Nutrition, Weight, and Quality of Life – Part 1 of 3

I am so excited about The Marfan Foundation’s initiative to focus on the quality of life issues...

Community, Quality of Life March 10, 2016February 24, 2021

College with Loeys-Dietz syndrome

College can be one of the most fun periods in a person’s life, yet it can also be one of the...

Quality of Life January 11, 2016February 24, 2021

Living Well With Marfan Syndrome

From a very young age, I understood that I was not like other kids. I knew that I had eyes that...

Quality of Life December 3, 2015February 24, 2021

Quality of Life: The Three Big Questions

You see your doctors, take your medications, have your Marfan syndrome features monitored...

Quality of Life November 4, 2015February 24, 2021

Steve Henry – My Marfan Story

Many people with Marfan syndrome and related disorders find strength from their faith. It helps...

Quality of Life April 28, 2014February 25, 2021

Embracing A Road Not Chosen Through Painting

Embracing a road not chosen is a choice that is put in front of all of us when facing an illness...

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Together, We Can Know the Signs and Fight for Victory

Know the signs. Fight for victory.

Together, We Can Know the Signs
and Fight for Victory