When People Don’t Get It
As an individual with Marfan syndrome, you've most likely had that awkward encounter with a...
Blog Category: Quality of Life
Nutrition, Weight, and Quality of Life – Part 3 of 3
In recent blog posts, we shared Alix McLean Jennings’ story about how she worked with a...
Nutrition, Weight, and Quality of Life – Part 2 of 3
We recently shared Alix McLean Jennings’ story about how she worked with a nutritionist to bring...
Nutrition, Weight, and Quality of Life – Part 1 of 3
I am so excited about The Marfan Foundation’s initiative to focus on the quality of life issues...
College with Loeys-Dietz syndrome
College can be one of the most fun periods in a person’s life, yet it can also be one of the...
Living Well With Marfan Syndrome
From a very young age, I understood that I was not like other kids. I knew that I had eyes that...
Quality of Life: The Three Big Questions
You see your doctors, take your medications, have your Marfan syndrome features monitored...
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