#KnowFightWin for Marfan Awareness Month
February is Marfan Awareness Month and The Marfan Foundation urges everyone in the Marfan and...
Category: Awareness
Survey Results Reveal Greatest Obstacles to Quality of Life
In a survey conducted by The Marfan Foundation to identify the quality of life issues in the...
Marfan and Related Conditions Community Invited to Participate in Hill Day
The Marfan Foundation is holding its Lobby Day on Capitol Hill on June 20. As a Marfan syndrome...
Legislative Action Alert: Urge Responsible Healthcare Reform
The 115th Congress and the incoming administration have made it a priority to “repeal and...
The Marfan Foundation Launches Marfan Awareness Month on February 1 with Multi-pronged #IKNOWMARFAN Campaign
Social media and grassroots events planned to raise awareness of the signs of Marfan and related...
You Can Help Increase Federal Research Funding: Take Action Now
Due to sequestration (spending cuts) and flat budgets in recent years, the National Institutes of...
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