A Make-Over Because of the Marfan Annual Conference
Ashley Burks was 23 when her life changed. That year, 2005, she excitedly attended the Marfan...
Blog Category: Conference
“If This is the Future of the Foundation, Then Victory is Around the Corner!” Teen Council members are leaders and role models
The Marfan Foundation’s Teen Council is a force to be reckoned with now. And they are clearly...
Krystal Camire – My Marfan Story
My journey with Marfan syndrome has been a long and complicated one. I was first tested when I was...
Peter Donato – My Conference Story
The end of this year will mark 10 years since my world changed, 10 years since my parents scoured...
Julie Kurnitz’s Marfan Story Gives Hope to Others
Ten years ago, we lost a dear member of our community, Julie Kurnitz. Julie served on our Board of...
Cindy Amdur – My Marfan Story
“I wouldn’t worry too much about the rapid heart beat, but you should look at this.” Those...
WORK IT!
I first got involved with The Marfan Foundation the summer before my freshman year of high school....
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