Know. Connect. Thrive.

Blog Category: Education

Advocacy, Awareness, Education, Quality of Life February 9, 2021February 24, 2021

A Costco Shopper Saved my Life

“If she’s your Mom, you need to get tested,” a woman said to me. She had noticed me – a...

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Education, Healthcare Management, Surgery August 12, 2020February 24, 2021

A Look Back: How Far We’ve Come in Aortic Surgery for Marfan Syndrome

My interest in Marfan syndrome started many years ago when I was in high school in South Africa....

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Awareness, Community, Education April 6, 2020February 24, 2021

Fierce Compassion: Becca Weust and the Stories She Tells

A few years ago, while writing stories for a healthcare company, I found myself in conversation...

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Awareness, Community, Education, Quality of Life December 2, 2019February 24, 2021

#VictoryToday

On December 3, the entire world will be participating in Giving Tuesday. Many people with Marfan...

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Education, Healthcare Management August 24, 2019February 24, 2021

Working with Your School Nurse

For parents of a child with a connective tissue condition, worrying is a daily habit. The...

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