A Teen’s Perspective: Finding a Community at Conference
As a teen with a connective tissue condition, building relationships with others who “get” you...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
New Director Named for The VEDS Movement
Ryan Rodarmer, MS, has been selected by The Marfan Foundation to lead The VEDS...
A Trip to Conference Leads to a Marfan Diagnosis for 30+ Family Members
Last year, Reginald “Reg” Bronson and his family gathered for the funeral of his brother who...
Foundation Receives Mental Health Impact Grant from Global Genes
The Marfan Foundation is honored to receive a grant from Global Genes to support mental health...
Registration is Open for The Marfan Foundation’s 39th Conference in Chicago, July 13-16
The Marfan Foundation, in conjunction with Ann & Robert H. Lurie Children's Hospital of...
The Marfan Foundation to Honor Reed E. Pyeritz, MD, PhD, and Sanjeev Bhalla, MD, at Heartworks St. Louis, March 11
The Marfan Foundation is honored to present Reed E. Pyeritz, MD, PhD, with a Lifetime Achievement...
The Marfan Foundation Announces Board Chair-Elect
The Marfan Foundation is honored to announce that Bert Medina has been named chair-elect...
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