We See Your Impact
Awareness. In the Marfan world, this is one word with infinite meanings and feelings attached....
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
The Marfan Foundation Debuts Kamden’s Korner for Neonatal Marfan Awareness
On Sunday, February 6, as The Marfan Foundation celebrates the South Florida Walk for Victory, the...
Small Victories = Big Impact During Marfan Awareness Month (February)
The Foundation knows that small victories have a big impact, especially during Marfan Awareness...
HeartWorks Chicago
Please join Chairs James & Jess Milburn and their committee for the first HeartWorks Chicago...
My Doctor Knew Me – He Knew Amy
In 1971, at the young age of two, Amy Grimshaw had a routine appointment with a doctor at the Army...
Las inscripciones están abiertas para la Cumbre sobre el Síndrome de Marfan y Condiciones Afines
Ya están abiertas las inscripciones para la Cumbre de la Fundación Marfan: Información...
Three Keys to a Positive Outcome
Looking back on her life growing up with Marfan syndrome, Taylor Storm can identify three keys...
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