Top Five Things I Wish I Knew Before My Aortic Surgery
When I had my open-heart surgery to repair my aorta back in the summer of 2014, I did not have...
The Marfan Blog
Your Questions Answered: Medical Geneticist and Genetic Testing
If you have a connective tissue condition or are seeking an evaluation for one, you know that you...
Mental and Physical Recovery from Surgery
This is me y’all. In all my glory. I’m scarred from the belly up. I have been conquering this...
Taking Control
As a softball pitcher, I was used to controlling a game’s tempo. I could choose to take a breath...
Three Things I’ve Learned In 25 Years Since Diagnosis
I was diagnosed with Marfan syndrome at the age of ten during a visit to the Mayo Clinic on...
A Look Back: How Far We’ve Come in Aortic Surgery for Marfan Syndrome
My interest in Marfan syndrome started many years ago when I was in high school in South Africa....
Top 10 Benefits of Remote Jobs for those with a Chronic Condition
When I came to work for the Foundation in 2016, I was the first full-time employee with Marfan...
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