CRISPR and Marfan Syndrome
Have you heard of CRISPR gene editing technology and wondered if it could one day be used to treat...
The Marfan Blog
My Marfan Story: Kacey Lamphier
The month of February is extra important to me as it marks the month of the heart. I have been...
Marfan Diagnosis: A Game Changer
A Marfan or related disorder diagnosis can be elusive for an athlete, particularly an athlete who...
5 Tips for Educating your Doctor about Marfan Syndrome
Medicine is constantly changing, and often faster than doctors can keep up. Your doctor has to...
Marfan Awareness: Paula’s Story
In early January 1985, Dr. Reed Pyeritz, of Johns Hopkins Hospital in Baltimore confirmed, through...
Cardiac Conditions Associated with Marfan Syndrome: Early Detection is Key
Marfan syndrome can affect many parts of the body, but the most serious feature of the disorder is...
In 2018, Resolve to Practice Self-Care
When we wish others a healthy and happy new year, we do not say those words lightly. In many...
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