Gone But Never Forgotten: A New Way to Think About Grief
I like to think that I’m a fairly positive person, especially when it comes to my Marfan...
The Marfan Blog
CRISPR and Marfan Syndrome
Have you heard of CRISPR gene editing technology and wondered if it could one day be used to treat...
My Marfan Story: Kacey Lamphier
The month of February is extra important to me as it marks the month of the heart. I have been...
Marfan Diagnosis: A Game Changer
A Marfan or related disorder diagnosis can be elusive for an athlete, particularly an athlete who...
5 Tips for Educating your Doctor about Marfan Syndrome
Medicine is constantly changing, and often faster than doctors can keep up. Your doctor has to...
Marfan Awareness: Paula’s Story
In early January 1985, Dr. Reed Pyeritz, of Johns Hopkins Hospital in Baltimore confirmed, through...
Cardiac Conditions Associated with Marfan Syndrome: Early Detection is Key
Marfan syndrome can affect many parts of the body, but the most serious feature of the disorder is...
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