Living with the Typical Marfan Body Type
“Oh, my goodness, how skinny you are.” “It takes a big man to love a skinny...
The Marfan Blog
A Make-Over Because of the Marfan Annual Conference
Ashley Burks was 23 when her life changed. That year, 2005, she excitedly attended the Marfan...
The Marfan Foundation and Backpack Health: Frequently Asked Questions
The Marfan Foundation announced that, starting today, it is making a new app available for free to...
Earthly Angels
During National Nurses Week, I would like to honor the wonderful men and women who serve...
Gone But Never Forgotten: A New Way to Think About Grief
I like to think that I’m a fairly positive person, especially when it comes to my Marfan...
CRISPR and Marfan Syndrome
Have you heard of CRISPR gene editing technology and wondered if it could one day be used to treat...
My Marfan Story: Kacey Lamphier
The month of February is extra important to me as it marks the month of the heart. I have been...
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