The Marfan Foundation and Backpack Health: Frequently Asked Questions
The Marfan Foundation announced that, starting today, it is making a new app available for free to...
The Marfan Blog
Earthly Angels
During National Nurses Week, I would like to honor the wonderful men and women who serve...
Gone But Never Forgotten: A New Way to Think About Grief
I like to think that I’m a fairly positive person, especially when it comes to my Marfan...
CRISPR and Marfan Syndrome
Have you heard of CRISPR gene editing technology and wondered if it could one day be used to treat...
My Marfan Story: Kacey Lamphier
The month of February is extra important to me as it marks the month of the heart. I have been...
Marfan Diagnosis: A Game Changer
A Marfan or related disorder diagnosis can be elusive for an athlete, particularly an athlete who...
5 Tips for Educating your Doctor about Marfan Syndrome
Medicine is constantly changing, and often faster than doctors can keep up. Your doctor has to...
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