The Marfan Blog

When it Feels Like Marfan is Winning

About six months ago, I made the decision to “retire” from my career as a full time nanny at...

Community, Quality of Life November 1, 2016February 24, 2021

Quality of Life, Volunteer October 13, 2016February 24, 2021

My Marfan Story: Selma Kerzman

Blake and I met in high school. When I went to his high school graduation, I met his mom and dad....

Community, Diagnosis, Know the Signs, Quality of Life September 8, 2016February 24, 2021

Sinclaire’s Story from the Heart

Most people affected by Marfan syndrome experience a life-changing moment when they or a loved one...

Diagnosis, Know the Signs, Quality of Life August 16, 2016February 24, 2021

What Fulfills You?

When you think about your life as an able-bodied person, what fulfills you? Does going to work and...

Community, Know the Signs, Quality of Life July 20, 2016February 24, 2021

Linh Ngo: My Marfan Story

Part 1 of Linh Ngo’s Marfan story is reprinted here with permission from the author. You can...

Quality of Life June 28, 2016February 24, 2021

Improving Your Quality of Life: An Introduction to Reflexology

Reflexology can help reduce pain and increase energy. It is not a cure, but it can make the...

Community, Quality of Life May 13, 2016February 24, 2021

When People Don’t Get It

As an individual with Marfan syndrome, you've most likely had that awkward encounter with a...

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Together, We Can Know the Signs and Fight for Victory

Know the signs. Fight for victory.

Together, We Can Know the Signs
and Fight for Victory