To Know or Not to Know: Genetic Testing and Marfan Syndrome
How the value of genetic testing has improved Just a few years ago, diagnosis of Marfan...
The Marfan Blog
Newly Diagnosed? Veterans in the Marfan Community Offer Advice
When you or a loved one receives a diagnosis of Marfan syndrome or a related disorder, you enter a...
The Journey of [Control] Acceptance
Life is constantly in session, whether I am ready for it or not. There is a never ending battle...
Physical Therapy: Myths and Facts
People everywhere are experiencing the transformative effect physical therapy can have on their...
Sydney Lerman Pediatric Hospitality Program: Join Sydney and Carly in Giving Back
Sydney Lerman, of Westchester, NY, is a smart, fun-loving, and spirited daughter, sister, cousin,...
My Marfan Story: Keith Avitabile
The Avitabile family has a long-time commitment to The Marfan Foundation. This year, Scott...
Beautiful Gift
Hi my name is Allison. I was diagnosed with Marfan syndrome when I was 15 years old after my older...
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