Today is VEDS Action Day
Please note: this story discusses and depicts emergency medical experiences. Guest...
The Marfan Blog
“I still have so much to live for”: healing after Marfan-related aortic surgeries
Guest Blogger Rosa Adriana Felix is an aortic surgery survivor. She shares her story in her own...
Mi Historia con el Síndrome de Marfan y la Disección Aórtica
My Story with Marfan Syndrome and Aortic Dissection La bloguera invitada Emily Herrera...
From Survivor to Advocate and a Roar for Aortic Awareness
Guest Blogger Ryan Rodarmer is the Director of the VEDS Movement, a Division of the Marfan...
Nuestro camino con el Síndrome Marfan
Mi nombre es Mary de Arias de nacionalidad peruana, radico junto a mi familia en...
Community Member, Physical Therapist
Diane Rich Shares Her 2025 Conference Experience Diane Rich, PT, DPT offers her first-person...
“An emotional jamboree…” One parent’s perspective on Marfan syndrome
Monica shares her personal perspective regarding wellbeing and navigating her "parenting journey"...
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