Embracing A Road Not Chosen Through Painting
Embracing a road not chosen is a choice that is put in front of all of us when facing an illness...
The Marfan Blog
Aortic Dissection, My Family, and the Annual Marfan Conference
I don’t have the greatest memory, so I am not sure when I attended my first conference. I do...
Weight Gain and Marfan Syndrome – Why Can’t I Put On Weight?
Many people with Marfan syndrome have difficulty gaining weight, especially when they are...
My Daughter’s First Marfan Conference – A Decade After Diagnosis
There we were, at The Marfan Foundation’s 2013 Annual Family Conference in Beverly Hills,...
Flaunting Every Single Bit of My DNA – Living with Marfan Syndrome
Though I stand at a measly 5'8 for a “Marf,” as a freshman in high school, I towered over my...
5 Things You Can Do for Marfan Awareness Month
Do you still get blank stares from people when you say that you have Marfan syndrome? How many...
The First 6 Things You Should Do When Diagnosed with Marfan Syndrome
It’s the beginning of the new year. Is it the beginning of your Marfan journey? If you just...
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