Blog Category: Advocacy

Advocacy, Awareness, Education, Quality of Life February 9, 2021February 24, 2021

A Costco Shopper Saved my Life

“If she’s your Mom, you need to get tested,” a woman said to me. She had noticed me – a...

Advocacy, Awareness, Quality of Life February 2, 2021February 24, 2021

Healthy Life Comes From Awareness

I was diagnosed with Marfan syndrome around the age of 12 years old, while growing up in Meridian,...

Advocacy, Education, Healthcare Management January 11, 2019January 31, 2024

Advocacy in Action: My Experience Lobbying for The Marfan Foundation on Capitol Hill

In June 2017, a midterm election had just occurred with the issue of pre-existing conditions and...

Advocacy, Awareness, Know the Signs May 22, 2014February 25, 2021

Ben Carpenter – My Marfan Story

Before I share my story, I want to clarify that the title of my book, “The Bigs,” has nothing...

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Together, We Can Know the Signs and Fight for Victory

Know the signs. Fight for victory.

Together, We Can Know the Signs
and Fight for Victory