Know the Signs, Fight for Victory

Blog Category: Awareness

Awareness September 20, 2025September 20, 2025

“I still have so much to live for”: healing after Marfan-related aortic surgeries

Guest Blogger Rosa Adriana Felix is an aortic surgery survivor. She shares her story in her own...

Read More

Advocacy, Awareness, Community, Diagnosis, Español, Healthcare Management, Know the Signs September 17, 2025September 24, 2025

Mi Historia con el Síndrome de Marfan y la Disección Aórtica

My Story with Marfan Syndrome and Aortic Dissection La bloguera invitada Emily Herrera...

Read More

Awareness, Education, Know the Signs September 16, 2025September 18, 2025

From Survivor to Advocate and a Roar for Aortic Awareness

Guest Blogger Ryan Rodarmer is the Director of the VEDS Movement, a Division of the Marfan...

Read More

Awareness, Family Planning, Quality of Life April 8, 2025April 9, 2025

Leticia’s Pregnancy Story: “I know how to take care of myself…”

Decisions around family planning, pregnancy, and related considerations are very personal. We...

Read More

Awareness March 14, 2025March 14, 2025

“Marfan just happens to be a part of me…” Andrea’s Story

Andrea Aguiar shares her first-person experiences living with Marfan syndrome in this guest...

Read More

Awareness, Community, Conference March 11, 2025March 11, 2025

Teen Voices: Overcoming Challenges

Being a teen isn’t always easy, and teens with genetic aortic and vascular conditions like...

Read More

Together, We Can Know the Signs
and Fight for Victory

View all Divisions

View Our science and treatment arm

Know the signs. Fight for victory.

Join us in the fight for victory over Marfan syndrome, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions. Help us create a world in which everyone with these conditions can live their best life.