Know the Signs, Fight for Victory

Blog Category: Awareness

Advocacy, Awareness October 22, 2025October 22, 2025

Behavioral Health and Concurrent Chronic Illness: A Call to Action

ADVISORY: This post discusses depression, addiction, and loss. Guest blogger Rosanne...

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Advocacy, Awareness, Mental Health, Quality of Life October 16, 2025October 16, 2025

Today is VEDS Action Day

Please note: this story discusses and depicts emergency medical experiences. Guest...

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Awareness September 20, 2025September 20, 2025

“I still have so much to live for”: healing after Marfan-related aortic surgeries

Guest Blogger Rosa Adriana Felix is an aortic surgery survivor. She shares her story in her own...

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Advocacy, Awareness, Community, Diagnosis, Español, Healthcare Management, Know the Signs September 17, 2025September 24, 2025

Mi Historia con el Síndrome de Marfan y la Disección Aórtica

My Story with Marfan Syndrome and Aortic Dissection La bloguera invitada Emily Herrera...

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Awareness, Education, Know the Signs September 16, 2025September 18, 2025

From Survivor to Advocate and a Roar for Aortic Awareness

Guest Blogger Ryan Rodarmer is the Director of the VEDS Movement, a Division of the Marfan...

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Awareness, Family Planning, Quality of Life April 8, 2025April 9, 2025

Leticia’s Pregnancy Story: “I know how to take care of myself…”

Decisions around family planning, pregnancy, and related considerations are very personal. We...

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Together, We Can Know the Signs
and Fight for Victory

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Know the signs. Fight for victory.

Join us in the fight for victory over Marfan syndrome, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions. Help us create a world in which everyone with these conditions can live their best life.