Finding Purpose After Loss: Parents’ Mission to Save Others
Kaitlyn was a vibrant, seemingly healthy 14-year-old girl who enjoyed musical theater and...
Know the Signs, Fight for Victory
Kaitlyn was a vibrant, seemingly healthy 14-year-old girl who enjoyed musical theater and...
I was diagnosed with Marfan Syndrome at birth. My father had a spontaneous mutation, and he passed...
Guest writer Mazzy Sass is a junior at Schreiber High School in Port Washington, NY (also the...
Now that I see things more clearly about my son’s condition, I can tell you our story. My...
My father, my brother, and I each had aortic root and valve replacements at 26 years old. Anyone...
I'd actually heard about Marfan Syndrome before my dissection. It was mentioned on a TV program...
"My whole world changed in an instant..." On July 31, 2020, my whole world changed in an...