Blog Category: Awareness

Awareness, Community, Volunteer November 11, 2014February 25, 2021

Adopt-A-School Victory Challenge Mini iPad Winner

This fall, we held the Adopt-A-School Victory Challenge to encourage parents, guardians,...

Advocacy, Awareness, Know the Signs May 22, 2014February 25, 2021

Ben Carpenter – My Marfan Story

Before I share my story, I want to clarify that the title of my book, “The Bigs,” has nothing...

Awareness, Volunteer January 8, 2014February 25, 2021

5 Things You Can Do for Marfan Awareness Month

Do you still get blank stares from people when you say that you have Marfan syndrome? How many...

Awareness, Volunteer September 27, 2013February 25, 2021

School’s in Session: What Better Time to Adopt a School!

If you have school-aged children with Marfan syndrome or a related disorder, you know how...

Awareness, Community, Volunteer September 3, 2013February 25, 2021

Running for Those Who Can’t

Why did I subject myself to the torment of a half marathon along the unforgiving pavement of Lake...

Together, We Can Know the Signs
and Fight for Victory

View all Divisions

View Our science and treatment arm

Know the signs. Fight for victory.

Join us in the fight for victory over Marfan syndrome, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions. Help us create a world in which everyone with these conditions can live their best life.

Donate Now

Stay Connected on Social Media

Have a question? We can help.

Together, We Can Know the Signs and Fight for Victory

Know the signs. Fight for victory.

Together, We Can Know the Signs
and Fight for Victory