In Memory of Chris Heaney
This week, we sadly bid farewell to a true pillar of our Marfan community, Christopher Heaney. In...
Know the Signs, Fight for Victory
This week, we sadly bid farewell to a true pillar of our Marfan community, Christopher Heaney. In...
I was so excited to attend the Michigan Regional Symposium in early May! We moved to Michigan in...
As a teen with a connective tissue condition, building relationships with others who “get” you...
A Marfan Awareness Month Blog Photo: In January, Christopher was presented with a...
Chronically ill and disabled individuals utilize the internet to find community and spread...
Awareness. In the Marfan world, this is one word with infinite meanings and feelings attached....
When you have a lifelong condition like Marfan syndrome, your daily experience looks different...