Blog Category: Education

Awareness, Community, Education, Quality of Life December 2, 2019February 24, 2021

#VictoryToday

On December 3, the entire world will be participating in Giving Tuesday. Many people with Marfan...

Education, Healthcare Management August 24, 2019February 24, 2021

Working with Your School Nurse

For parents of a child with a connective tissue condition, worrying is a daily habit. The...

Advocacy, Education, Healthcare Management January 11, 2019January 31, 2024

Advocacy in Action: My Experience Lobbying for The Marfan Foundation on Capitol Hill

In June 2017, a midterm election had just occurred with the issue of pre-existing conditions and...

Education, Know the Signs August 9, 2018February 24, 2021

A Workplace Issue You Probably Didn’t Anticipate

It never gets easier. Each time I have to tell someone new about my husband's condition, it seems...

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Together, We Can Know the Signs and Fight for Victory

Know the signs. Fight for victory.

Together, We Can Know the Signs
and Fight for Victory