Blog Category: Family Planning

Conference, Family Planning April 16, 2014February 25, 2021

Aortic Dissection, My Family, and the Annual Marfan Conference

I don’t have the greatest memory, so I am not sure when I attended my first conference. I do...

Conference, Family Planning March 11, 2014February 25, 2021

My Daughter’s First Marfan Conference – A Decade After Diagnosis

There we were, at The Marfan Foundation’s 2013 Annual Family Conference in Beverly Hills,...

Community, Diagnosis, Family Planning December 17, 2013February 25, 2021

What the Marfan Community Means to Us

When my younger daughter Cassie turned one almost six years ago, I thought we'd ended the craziest...

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Together, We Can Know the Signs and Fight for Victory

Know the signs. Fight for victory.

Together, We Can Know the Signs
and Fight for Victory