Your Questions Answered: Medical Geneticist and Genetic Testing
If you have a connective tissue condition or are seeking an evaluation for one, you know that you...
Blog Category: Healthcare Management
A Look Back: How Far We’ve Come in Aortic Surgery for Marfan Syndrome
My interest in Marfan syndrome started many years ago when I was in high school in South Africa....
Working with Your School Nurse
For parents of a child with a connective tissue condition, worrying is a daily habit. The...
Advocacy in Action: My Experience Lobbying for The Marfan Foundation on Capitol Hill
In June 2017, a midterm election had just occurred with the issue of pre-existing conditions and...
The Easiest Resolution: Taking Control of Your Health Journey in 2019
The ball has dropped, and we rang in the New Year. Ready or not, 2019 is here. As we slide back...
Jim Cavan: The Journey to Backpack Health
Maggie, with her mom, Jennifer, at the Foundation's Boston Walk for Victory in June. As...
Living with the Typical Marfan Body Type
“Oh, my goodness, how skinny you are.” “It takes a big man to love a skinny...
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