Blog Category: Quality of Life

Quality of Life January 7, 2021July 22, 2021

Choices

The moment in which a child is born is the most miraculous moment of opportunity. In the moment in...

Community, Healthcare Management, Quality of Life, Surgery December 1, 2020September 14, 2023

Top Five Things I Wish I Knew Before My Aortic Surgery

When I had my open-heart surgery to repair my aorta back in the summer of 2014, I did not have...

Quality of Life, Surgery October 22, 2020July 30, 2021

Mental and Physical Recovery from Surgery

This is me y’all. In all my glory. I’m scarred from the belly up. I have been conquering this...

Awareness, Diagnosis, Quality of Life September 2, 2020July 21, 2021

Three Things I’ve Learned In 25 Years Since Diagnosis

I was diagnosed with Marfan syndrome at the age of ten during a visit to the Mayo Clinic on...

Quality of Life June 2, 2020February 24, 2021

Top 10 Benefits of Remote Jobs for those with a Chronic Condition

When I came to work for the Foundation in 2016, I was the first full-time employee with Marfan...

Awareness, Community, Quality of Life March 4, 2020February 24, 2021

Pain and Perseverance

When you're living with a condition like Marfan syndrome, it's easy to fall into the thinking that...

Together, We Can Know the Signs
and Fight for Victory

View all Divisions

View Our science and treatment arm

Know the signs. Fight for victory.

Join us in the fight for victory over Marfan syndrome, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions. Help us create a world in which everyone with these conditions can live their best life.

Donate Now

Stay Connected on Social Media

Have a question? We can help.

Together, We Can Know the Signs and Fight for Victory

Know the signs. Fight for victory.

Together, We Can Know the Signs
and Fight for Victory